'There's plenty of time for a cure!'
On the Internet, especially on social media, I see a lot of families who have, or have lost, a child with Duchenne. I see a lot of families of newly diagnosed boys who find it really hard to accept the diagnosis of DMD. I reached out to some and tried to help, and hopefully have occasionally, but I remember when Dominic was diagnosed that it was very hard to speak to someone who had lost a child to Duchenne as that was an eventuality that I didn't want to acknowledge at all. That WOULD NOT happen. Not to Dominic. He was a 3 year old. I remember when Dominic was diagnosed being told that 'He was young and there was plenty of time for a cure to be found.' I remember being somewhat reassured by that. After all, medical science progresses all the time, doesn't it? I remember asking constantly on every hospital visit or phone call "Is there any positive research news?" There was occasionally some developments in treating Duchenne but never a cure. As Domin...