A prayer....
After he had a bad case of pneumonia, I had been told in February 2017, that Dominic was at end of life by a consultant at Queens square who cared for Dominic's Duchenne. Dominic hadnt long been out of hospital and it can take months to recover so he still wasnt himself and was still quite breathless. The consultant wrongly thought this was because of the DMD. Thank God, then, that it wasnt.
Anyway...It was enough for me to go into the mourning process then and my Doctor organised counselling. It helped as the counsellor was lovely.
Today I started counselling with her again.....this time in the most tragic of circumstances.
Today we only skimmed the surface really. The next session will be a tough one. Discussing Dominic and his end of life.
I then dropped two pouches off that I had knitted for orphaned joeys and other critters to go to Australia.
On the way back to pick Ben up from school, I decided to go into St Stephen's church, where Dominics old school, Watling View, used to go for their Church services.
I havent been to church to pray since Dominic passed away. I used to go every now and then previously including in the hospital chapel but since August I've only been to church for a charity carol service and midnight mass. I'm not hugely religious that is to say that I have always believed in God and have at times gone to church, regularly when the I was little and when my kids were little, but in recent years I have believed at a distance, prayed whenever I was near a church and led my life as a Christian would.
The church was empty and cold, which matched my mood, and I immediately thought how different it was filled with excited and happy Watling View children, normally at Christmas, years before.
I sat on the front row and this is pretty much what I prayed.
"Dear God. I havent prayed to you for a while and I dont really know why I'm here praying to you now as I don't know what to believe anymore. You can't help me now. The times over the years that I've prayed to you begging for you to spare Dominic's life and you didn't. You took him from me. I dont even know if I believe in you anymore but if I don't that would mean that I also don't believe in Heaven or an afterlife and the only thing keeping me going is believing that one day I will be with Dominic again, see him again. I cant bear to think that he has totally left me. That I cant live with.
How could you take him? He deserved so much more. Why not take me instead? Is he OK without me? He isnt scared, is he? Is Mum looking after him? If I believe in you I know that Dominic is with you. He was too special not to be. You clearly needed an extra special angel.....so you took mine.
Is there any way you could let me know Dominics ok? Please? I miss him so much.
Please look after him and my Mum. Both left too soon.......(bit about other relatives)....... Please give me strength to look after my other children and help Jamie to cope with me. Hes finding it all hard unsurprisingly. We have been given more than our fair share of bad times. Enough is enough now. We cant take anymore. I'm finding it hard to be here full stop.
I dont know if or when I will be back. I don't know anything anymore.
I am so angry with you if you're there.
Why?
Amen."
This was said very quietly with many tears. I think I have to believe that there are opposites for everything. Up and down, high and low, yin and yang....and good and bad, therefore God and the Devil. I have to believe that the Devil was responsible for Dominic's illness, not God...that there is a heaven and that's where Dominic is and where I will be too one day. I cant live with the thought that I will never see him again.
Heavy going, I know but this was never going to be easy.😔
Anyway...It was enough for me to go into the mourning process then and my Doctor organised counselling. It helped as the counsellor was lovely.
Today I started counselling with her again.....this time in the most tragic of circumstances.
Today we only skimmed the surface really. The next session will be a tough one. Discussing Dominic and his end of life.
I then dropped two pouches off that I had knitted for orphaned joeys and other critters to go to Australia.
On the way back to pick Ben up from school, I decided to go into St Stephen's church, where Dominics old school, Watling View, used to go for their Church services.
I havent been to church to pray since Dominic passed away. I used to go every now and then previously including in the hospital chapel but since August I've only been to church for a charity carol service and midnight mass. I'm not hugely religious that is to say that I have always believed in God and have at times gone to church, regularly when the I was little and when my kids were little, but in recent years I have believed at a distance, prayed whenever I was near a church and led my life as a Christian would.
The church was empty and cold, which matched my mood, and I immediately thought how different it was filled with excited and happy Watling View children, normally at Christmas, years before.
I sat on the front row and this is pretty much what I prayed.
"Dear God. I havent prayed to you for a while and I dont really know why I'm here praying to you now as I don't know what to believe anymore. You can't help me now. The times over the years that I've prayed to you begging for you to spare Dominic's life and you didn't. You took him from me. I dont even know if I believe in you anymore but if I don't that would mean that I also don't believe in Heaven or an afterlife and the only thing keeping me going is believing that one day I will be with Dominic again, see him again. I cant bear to think that he has totally left me. That I cant live with.
How could you take him? He deserved so much more. Why not take me instead? Is he OK without me? He isnt scared, is he? Is Mum looking after him? If I believe in you I know that Dominic is with you. He was too special not to be. You clearly needed an extra special angel.....so you took mine.
Is there any way you could let me know Dominics ok? Please? I miss him so much.
Please look after him and my Mum. Both left too soon.......(bit about other relatives)....... Please give me strength to look after my other children and help Jamie to cope with me. Hes finding it all hard unsurprisingly. We have been given more than our fair share of bad times. Enough is enough now. We cant take anymore. I'm finding it hard to be here full stop.
I dont know if or when I will be back. I don't know anything anymore.
I am so angry with you if you're there.
Why?
Amen."
This was said very quietly with many tears. I think I have to believe that there are opposites for everything. Up and down, high and low, yin and yang....and good and bad, therefore God and the Devil. I have to believe that the Devil was responsible for Dominic's illness, not God...that there is a heaven and that's where Dominic is and where I will be too one day. I cant live with the thought that I will never see him again.
Heavy going, I know but this was never going to be easy.😔
Both photos were taken on mine and Dominic's best holiday together.
Centerparcs Woburn December 2018
(Our last Christmas together)
No words ... 💔😠xxx
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